Due to lack of support locally, the West Berks ME & FM Group has now officially closed. I’m very sad about this but I couldn’t continue to try run the group on my own as I’m busy with other things. I understand that coffee mornings are being organised in Newbury for people with Fibro but the person involved didn’t want to benefit from the existing group structure and hasn’t given me any details of the new meetings.
For information on Fibro, please see www.fibroaction.org or email firstname.lastname@example.org. If you would like to meet me (Lindsey) for coffee in Newbury on a one-to-one basis, then please contact me through FibroAction.
Reading Area ME Support Group has recently made a submission to the APPG Inquiry for NHS CFS/ME Services, and we feel it is important that patients with CFS/ME across Berkshire are all aware of the ongoing difficulties with the PCTs.
We would also urge individuals with CFS/ME to make an input to the Inquiry by filling in & sending the questionnaire to the APPG. It can be downloaded at website. http://appgme.org.uk/
Besides sending direct to APPG it would be appreciated if a copy could be sent to Sarah too please, for us to be kept in the picture re Consultant referrals, in Berks or Out of area & any NHS treatment received, or NOT
Reply to Sarah Morgan, Core Group Member, Reading Area ME Support Group
Questionnaires should be submitted to APPG by the 20th of July 2009 to email@example.com or
Dr Desmond Turner MP
House of Commons
Tags: West berks ME & FM Group
West Berks ME & FM Group are looking for new committee members – if you are interested or have any questions regarding the group please contact Alison at firstname.lastname@example.org
Group meetings have been postponed during the summer months– if anyone is interested in attending or organising future meetings please contact Alison at email@example.com
Alison Randall has been appointed the new Administrator/fundraiser for West Berkshire ME & FM group. Alison’s role will include organising fundraising events, updating the website and preparing the group newsletter.
If anyone has any suggestions, news items or articles for the website or newsletter please contact Alison at firstname.lastname@example.org
Tags: administrator, Berkshire, Fibromyalgia, Fibromyalgia Syndrome, FM, FMS, fundraiser, Job, ME, ME/CFS, Newbury, Support group, West berks ME & FM Group, West Berkshire
The West Berks ME & FM group has been awarded a grant from the Berkshire Community Foundation Grassroots Grants, to enable the group to employ a part-time administrator/fundraiser.
The post is for 4 hours/week and would best suit someone self-employed who wants to work at home with flexible hours. If you’re in the West Berkshire area and are interested, contact us!
Tags: Berkshire, CFS, Fibro, FibroAction, Fibromyalgia, Fibromyalgia Syndrome, Fibromyalgia Walk, FM, FMS, ME, ME/CFS, Newbury Rotary, Snelsmore Common, Sponsored walk, West berks ME & FM Group
Lindsey and Debbie are going to be taking part in the Newbury Rotary organised Sponsored Walk on May 10th, to raise money for FibroAction.
The walk is taking place from 12pm at Snelsmore Common and there is the option to do a shorter 4 mile walk instead of the 8 mile walk Lindsey and Debbie will be aiming for. We would like to get a few other group members to join us – even if just to take photos and cheer us on at the start and finish, so if you’re interested, let us know.
Sponsorship pages will be up and running soon!
Tags: Andrew Holman, Berkshire Fibromyalgia, Berkshire ME, CFS, Chronic Fatigue Syndrome, Fibro, Fibromyalgia, Fibromyalgia in 2009, Fibromyalgia Syndrome, FM, ME, meeting, Newbury, Support group, West berks ME & FM Group, West Berkshire
Fibromyalgia in 2009 DVD showing
Tuesday 7th April, 7pm
Meeting Rooms 4 & 5, the West Berkshire Community Hospital
For the meeting on Tuesday April 7th, the group will be showing the recording of Fibromyalgia in 2009, a lecture by American Fibro expert Andrew Holman MD which took place at Guy’s Hospital, london just before Christmas.
Fibromyalgia in 2009 offers:
- A comprehensive view of Fibromyalgia Syndrome from a doctor and researcher who is leading the way into new avenues of research.
- Discussion of sleep stage architecture and the involvement of the Autonomic Nervous System, two major factors in Fibromyalgia Syndrome.
- Discussion of positional cervical cord compression, a new area of research that may apply to many people with Fibro.
- A review of the latest trials of medications.
The lecture in December was fascinating and this presentation gives those people who were unable to attend that lecture a chance to hear what Dr Holman had to say.